ASD Diagnosis: Understanding the Early Signs and Navigating the Journey
Every journey begins with a moment that shifts our perspective, and for me, that moment came when I noticed the subtle yet telling signs in my son, Levi. It was more than just milestones being missed or quirky behaviours—it was the realization that Levi experienced the world in his own beautiful and unique way. The path to his Autism Spectrum Disorder (ASD) diagnosis was one of discovery, resilience, and ultimately, acceptance. It wasn’t just Levi’s journey; it was mine too, as his mother and biggest advocate.
Recognizing the Early Signs of ASD
The earliest signs of ASD can often be overlooked or dismissed as just part of a child’s unique personality. But as Levi grew, certain behaviours caught my attention. His tongue tie at birth had already raised some concerns about his speech development. By the time he was one, a doctor advised us to consult a speech pathologist, as he wasn’t meeting expected milestones. I remember holding onto hope that his speech would come with time, but as months passed, other signs began to emerge.
Levi was intensely sensitive to sensory inputs—sounds seemed louder to him, textures more overwhelming, and routines became non-negotiable. A slight change in our daily schedule would upset him, leading to tears and frustration. Behaviours like hand flapping, when he was excited or stressed, became more frequent, and haircuts turned into an ordeal. While I tried to convince myself these were just quirks, a family member gently suggested that these might be indicators of something more.
These observations, though unsettling at first, became the key to unlocking a deeper understanding of Levi’s unique way of navigating the world. I began to realise that his differences weren’t something to be "fixed" but rather cherished and supported.
The Diagnostic Journey
Getting to an official diagnosis was far from easy. It required endless appointments, assessments, and waiting periods that felt like an eternity. Our first step was visiting a pediatrician who listened to my concerns and suggested further evaluation. The process involved gathering reports from Levi’s school, speech pathologists, and a behavioural counsellor. Each report painted a clearer picture of his challenges but also highlighted his strengths.
When the autism diagnosis finally came, it brought with it a mix of emotions. Relief, because I finally had an answer and a direction. Fear, because I wasn’t sure what the future would hold. As a single mother, I felt the weight of responsibility squarely on my shoulders. But in that moment, I made a decision—to move forward with hope, determination, and an open heart.
This diagnosis wasn’t just about giving Levi a label; it was about understanding his needs and equipping both of us with the tools to navigate life together.
Finding Support and Building Community
Support became my lifeline. I turned to counseling, where I could process my emotions and find ways to cope with the challenges ahead. Parenting programs for children with autism provided practical strategies that I could implement at home. But perhaps the most impactful support came from connecting with other mothers who understood exactly what I was going through.
Social media became a platform for sharing our journey. What started as a way to document Levi’s progress quickly turned into a space where I could connect with others navigating similar challenges. The comments and messages from other parents were a reminder that we weren’t alone. This community became a source of encouragement, advice, and solidarity.
Levi’s school played a significant role in his growth. Being in a special needs unit allowed him to thrive in an environment tailored to his learning style. He began communicating more about his daily experiences, and each milestone, no matter how small, felt like a victory.
Lessons Learned and Moving Forward
Levi’s autism diagnosis has taught me more than I ever thought possible—not just about parenting, but about life itself. I’ve learned to see the world through his eyes, where the smallest details hold immense beauty. His love for art, trains, and Legos reflects a creative and curious mind that is always exploring. These are not just hobbies; they are windows into his personality, his joy, and his brilliance.
As I reflect on this journey, I realise that it’s not just about adapting to Levi’s needs. It’s about embracing the lessons he’s taught me—patience, strength, and unconditional love. I’ve learned to celebrate his progress and accept that his path may look different from others, but it is no less extraordinary.
For parents who are just beginning their journey, my message is simple: early diagnosis is not an end; it is a beginning. It’s a chance to understand your child on a deeper level, to advocate for their needs, and to celebrate their individuality. The road ahead may be challenging, but it is also filled with moments of joy, growth, and connection.
Levi’s story is a testament to the strength that comes from embracing who we are, both as individuals and as a family. Together, we continue to grow, thrive, and find joy in the unique.
